Supporting children affected by rare diseases

We support families who need help to cover costs related to their children’s rare diseases.

In Europe, a disease is considered to be rare if it affects no more than 1 in 2000 people. Some of the children that we support are affected by diseases that occur in one in a million people. Almost all genetic diseases are rare, however not all rare diseases are genetic.

We also help children affected by oligodontia to get dental implants. Oligodontia is a rare genetic disorder where six or more permanent teeth are missing, therefore the child will not grow permanent teeth after losing their primary teeth. You can find more information about this project here.

The Children’s Foundation is currently supporting 64 children with rare diseases:

Eiko, Kelli, Elly, Christofer, Elisabet, Elisabeth, Nikita, Hanna-Liisa, Anette, Lisanna, Erika, Oliver, Katariina, Joonas, Linda, Andri, Elari, Franka, Hendra, Matteo, Sergei, Lara, Tessa, Sander-Lucas, Robin, Miina, Kateryna, Brita, Kevin, Loviise, Myroslav, Desiree, Robin, Eisi, Rihanna, Kevin, Helis, Otto, Lille, Reili, Ilja, Maria, Diana, Levi, Jegor, Kädi-Liis, Hanna, Hugo-Andre, Karolina, Henry, Rasmus, Hendrik, Susanna, Hanna, Kris, Teja, Dominika, Aleksander, Timo, Ats, Kaspar, Hermeliine, Henri and Ralf.

Until mid-summer, with the help of good donors, we also funded the treatment of Nora-Liisa, Aleksandr, Maarek, Katre, Kaia, Ksenia, Maria, Marie and Simon-Antonio, who were diagnosed with cystic fibrosis. From July 1, 2024, the medicine is on the list of discounted medicines of the Health Insurance Fund.