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Content of the support: Helping to cover the cost of music therapy for Katariina
The amount of the support: €2,652 for the support period
Duration of support: February 2024 – January 2025*
* Normally, the Children’s Foundation will extend the support at the end of the support period on the basis of need.
Introduction
Katariina (2012) has been diagnosed with the extremely rare genetic defect Syngap1. The girl has a permanent intellectual and speech disorder due to a genetic defect. Katariina has managed to grow out of the balance problems and muscle weakness characteristic of Syngap1 syndrome.
According to the rehabilitation plan, Katariina has been receiving the services of a physiotherapist, a psychologist, an occupational therapist, a speech therapist, a creative therapist and a special educator since the age of 3. In order to contribute to the child’s development in every way, the girl needs therapies on a larger scale than the state can support. According to the speech therapist’s assessment, Katariina cannot acquire verbal language through imitation in a completely normal way, but she could acquire the necessary skills for imitating language with the help of music therapy and using the speech apparatus in a more versatile way.
Katariina’s fine motor skills are higher than those of a 3 year old and have improved with the use of musical instruments. Katariina loves music and enjoys participating in musical activities. Music therapy gives her confidence and encourages her to use his grandmother’s grips and fingers more boldly.
With the support of generous donors, the Children’s Foundation will cover the cost of Katariina’s music therapy for the duration of the grant at a cost of €2,652. 10% of the total cost of the therapy remains for the family’s own contribution, and 156 euros is supported by the local government.
The Children’s Foundation supports Katariina since December 2020.