Content of the support: supporting home physiotherapy for Brita with a rare genetic disorder
The amount of the support: €2,890 over the support period
Duration of support: January 2024 – December 2024*
* Normally, the Children’s Foundation will extend the support at the end of the support period on the basis of need.
Introduction
Brita (2015) has been diagnosed with the extremely rare CYFIP2 gene, which is found in only nine children worldwide. As a result of the disease, Brita is unable to move around independently, does not speak and requires assistance with all activities of daily living, including transfers and mobility. Brita attends kindergarten during the day with the help of a carer and requires 24-hour assistance and guidance.
The aim of the physiotherapy service is to encourage the child to move as independently as possible in the home environment, to promote active participation in daily activities and to reduce the burden of care for family members. Brita cannot walk, but takes small steps with the aid. Thanks to physiotherapy, Brita could learn to move better and participate in daily activities.
That is why, thanks to the support of kind donors, the Children’s Foundation is helping to cover the cost of Brita’s home physiotherapy for €2,890 over the support period.
The Children’s Foundation supports Brita since June 2019.