The Childrens Fund supports Laura with severe skin disease

Laura (1 year and 4 months) with sensitive skin, suffering from a extremly difficult skin disease needs constant and expensive care. The foundation supports this family with 1500 euros.                                                                                                                   

Due to epidermolysis bullosa she has a problem with blisters and erosions on skin and mucosal membranes. Her skin is very sensitive and can be damaged by friction or any stronger contact as a result. In addition to the external problems, she gets painful erosions on mouths mucosa which makes eating difficult. 

 

Lauras mother Tatjana said that health insurance has ensured them 100 precent bargain for medications what the child in itself doesn't require. ,,Most important for us are creams and binding supplies but those we have to buy with a full price, “says the girls mother. In pharmacy necessary creams belong to retail drugs department. Resources are expensive and Lauras family spends over 200 euros per month on them. 

Childs condition depends on skins constant need for special treatment. Without proper care may  healing of blisters develop into scars, which hinder the mobility of different body parts. The treatment aims to prevent complications that cause disability.

 

According to the executive director of Childrens Fund Küllike Saar families are supported by getting necessary facilities until the end of year with 250 euros per month. 

 

Epidermolysis bullosa is a rare skin disease. Inherited disease in not curable, but with a right cure its possible to alleviate deficits. 

 

Since 2001 has the oldest charity foundation operating in southern Estonia Tartu University Hospitals Childrens Foundation collected donations to improve childrens treatment conditions. The mission of Childrens Fund is to awaken cocitizens affection and attention to the most delicate and vulnerable.